Rare Diseases International (RDI)
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Contact Details
URL: https://www.rarediseasesinternational.org/
Facebook: https://www.facebook.com/RareDiseasesInt
LinkedIn: https://www.linkedin.com/company/rare-diseases-international/
Twitter: https://twitter.com/rarediseasesint
Founded
2015-05-28 Madrid Spain
History
Instigated by D-XD6342 - EURORDIS - Rare Diseases Europe. Current bylaws adopted 10 Jan 2017.
Aims
United, expand and reinforce the rare diseases movement of patient organisations and patient advocates; put rare diseases on the agenda of international organizations and multilateral institutions, and on the national agenda of countries worldwide; strengthen rare disease patient groups capacity to act at local, national, regional and global levels and to interact with other rare disease groups.
Events
9 past events available with paid subscription only.Activities
Available with paid subscription only.Structure
Annual Meeting; Council. Committees (2): Finance and Sustainability; Advocacy. Working Groups. Hosted by D-XD6342 - EURORDIS - Rare Diseases Europe.
Finance
Available with paid subscription only.Publications
Available with paid subscription only.Members
Available with paid subscription only.Type I Classification
Available with paid subscription only.Type II Classification
Available with paid subscription only.Subjects *
Available with paid subscription only.UN Sustainable Development Goals **
UIA Org ID
XM7435
Last News
2022
** UN SDGs are linked to the subject classification.
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